Posts Tagged ‘Myelodysplastic Syndrome’

The Top Ten Things I’ve Learned During My First Month of Chemo

May 31, 2015

When I last posted, it was the eve of my first chemo treatment for Myelodysplastic Syndrome (MDS). There have been many MD Anderson visits since then for chemo, transfusions, clinical studies, reviews, and blood draws. I’ve learned a lot about myself, my family, my friends, and the hospital since then.

In the true David Letterman style, here are those top ten things starting with number ten.

TEN        A great place to eat while at MDA is the Rotary House. From the main building, on the third floor by elevator A, you cross the sky bridge to another building. It’s pricey, but very nice dining. We entertain all our guests there.

Holly and Lindsey spending the day with us.

Holly and Lindsey spending the day with us.

Nine     I cannot stitch during the long hours of transfusions. The IV line prevents me from being too active. I can’t listen to Audible books either as there are too many interruptions. The iPhone has given me many hours of diversion.

Eight     Some technicians are better than others at finding a vein from which to draw blood or give a transfusion.

Seven     When my pulse rate rises and I’m so short of breath I can barely walk any distance, these are signs I need a transfusion. Don’t wait for a sign of bleeding.

Six     My PA reads my blood results and knows what to prescribe. My Research nurse is my record/appointment keeper and constant contact. When my PA says I shouldn’t be going to Minneapolis Market for eight days without any blood work, believe her.

Jane, my research nurse

Jane, my research nurse

Five     If a technician is in training and you’re the guinea pig, you can refuse to have her perform such services as putting in a Central Venous Catheter. Ask for the expert.

Central Venous Catheter

Central Venous Catheter

Four     Thoughts and prayers from Facebook friends are uplifting and encouraging. I love getting messages while I’m spending the day at the hospital. I don’t feel so alone. Thank you, friends.

Comforting Facebook friends

Comforting friends

 

Three     Having our older son with us when we meet with the oncologist is reassuring, comforting and supportive.

Todd lending moral support

Todd lending moral support

Two     Our children, their spouses and grand children give me a boost when I’m with them. I forget I’m tired or worried about my cancer thanks to their love and distractions.

Beach with Ashton, Sydney and Lindsey

Galveston beach with Ashton, Sydney and Lindsey

Madison's graduation in Dallas

Madison’s graduation in Dallas

One     My husband is a trooper. We drive to MDA many days every week. Most mornings we are on our way at 6:00 AM. He’s behind the steering wheel and ready to get us there. We’ve had some laughs and some bored moments, but somehow we know this is the way it has to be for now. He never complains and sticks with me all day, each day we are there.

My man. He calls himself the driver.

My man. He calls himself the driver.

Bonus to come     Our youngest son, Troy, and his wife, Michelle, are in Long Beach, California expecting their first baby. Her due date is today. I have chemo all this coming week, but hope to get there for a couple of days the following week. I can’t wait to hold our newest grandson in my arms. Now what better peace could there be?

Little Mommy, Michelle

Little Mommy, Michelle

 

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